Tuesday, November 17, 2009

Ramblings of the day...

Hello Team Sadie...

Life continues on for the Huish's. It's hard to update sometimes because I feel like the events of our days seem to sound redundant. How I wish I was updating on Sadie's progress, her playing with the girls, going to school, preparing for some turkey and mashed potatoes, and a Christmas holiday entailing kindness and her astounding testimony and love of the Savior. Now, I make mention of where we go, what we've done, and how our life continues on without our princess. So, that said, here we go!

I had the opportunity to attend "Time Our For Women" on Saturday with my mom, which was a gathering of amazing LDS speakers and wonderful music. It was a time to laugh and keep eternal perspectives. I was in the company of my sweet mother and some of my best friends. It was indeed an uplifting experience. Hilary Weeks performed "If I Only Had Today" and "Just Let Me Cry", among other humbling songs. These songs brought much reflection on when I last heard her sing in person. These two songs mean very much... mom and I shed some tears when they were performed, yet they were of course beautiful.

The snow is upon us, and I'm not a big fan. I think I have that seasonal something or another where sun is my preference. Snow is beautiful, but I despise being cold or slipping on ice. Zac is the guy where a beautiful day to him as t-shirt weather is coat unhappy weather for me! At night he sleeps with the covers off where I need all blankets. And I know he is just itching to get the snow blower a turnin'! So, we deal with the weather, as we have made Utah our home. Livi is like her dad, Sam and Sadie are like mom. Makes for interesting times. I came home from TOFW, and found that dad had invested in a sled. It begins...

I was also on my way home calling to check in, and Livi says "You need to come home so you can help decorate the Christmas tree." I quickly thought that my bearings were off - nope, I think I got it... it isn't even yet Thanksgiving. I asked to talk to dad, and Zac said "Livi wanted to put up the tree." So again, what Livi wants she gets. She doesn't ask for much, just early tree decorating and a puppy. By the way, next time I post something that we did on a whim, like oh, getting a puppy, please ignore any sensitivity and knock some sense into us! Actually, we very much love Lily, but boy those were some months of puppiness and potty training. So, again, don't refrain from knocking us upside the head on that kind of stuff. I figure a Christmas tree in the middle of November can't do too much harm, or poop on the carpet.

The girls are doing well - Livi is showing us everyday just how smart she is. Sadie was very intelligent, and Livi is right there with her big sis. I must honestly say they both learned to read from the Book of Mormon - recognizing little words and graduating to bigger ones. It isn't anything we encouraged, just happened as we read. Smart, smart monkeys. Livi is playing the piano amazing, and of course continues to sing and dance all the time. Sam is her shadow in every way. When Livi puts her robe on, Sam needs her robe. When Livi wears dress up shoes, Sam does the same. Sam's favorite things are to wake up wanting a dress and cocoa-roos, repeatedly say "Mom" until I am face to face with her, peruse the pantry all day long, and dance with mom when any music comes on from a show or a toy. I love them so much. They are such great kids.

In the past week, Sam has had moments of random heartfelt cries where she just plops into my arms in tears. I ask what is wrong and she says "Sadie". I ask if she misses Sadie and she says "Yeah, I miss Sadie." This is new to me, and is bittersweet - she is acknowledging Sadie, which means she remembers, but she is tenderhearted. Livi had a moment as well when we were at a pool recently. She was sitting by the edge, and when we called her name, she wouldn't turn around. I went and sat by her, and she plopped in my arms with those same heartfelt cries, saying she missed Sadie. Again, this is our reality, and though it just completely breaks my heart, I am thankful at the same time that they are getting those emotions out. I have never lost a sibling, so I have no idea what they are feeling, albeit at their tender ages.

As for my health, here's an update because it has been asked, but boo on that, skip it if you feel! All is going well. I haven't had a seizure or "spacing" episode in almost a month. We went to another neurologist for a second opinion, and he concurred with the diagnosis. As he happened to be a bishop, it was comforting to talk about the plan of salvation, the need to grieve and mourn, etc. He basically said that my body is saying "slow down and mourn Sadie." Thought that is what I was doing, and I have the best counselor in Zac, so a little confused there. I continue on some anti-seizure and anxiety meds, and recently took a visit to our bereavement specialist from our hospice team (Kay). As we talked, I basically asked what I needed to do to "grieve". Through this visit and the following days, my eyes were indeed opened. I just jumped right back into life. I was trying to make up lost time with the girls, keep busy, go everywhere, etc. I was doing what I thought was right and acknowledged missing Sades, but not looking out for "me mourning". What a very fine line of balancing! So Kay gave me some suggestions which have indeed helped, and I share them for the sake of possibly helping any of you.

I wouldn't say I am angry or bitter, but Kay suggested in those days of frustration, get it out. So scream (don't scare your children though), go hit softballs until you can't lift the bat, or go throw eggs at a rock (careful in your location! -no vandalism though, as birds use the shells, etc). I told Zac of that one and on our way home he picked up four dozen eggs! A few days later, we went down a back road, and threw them at the rocks and ground. It felt good, and it actually turned into a fun time with the kids. Nothing like seeing your little girls eggin' something. But we are thankful for the good suggestion. ;)

I write to Sadie every other night or so in a journal, and on night I don't write I watch a video of her. Sometimes in the dark of night I lay on the couch and talk to her like she is next to me. I've delved into anything that can be uplifting regarding books and articles. I came across one this morning in a completely random occurrence; here is the link.

http://lds.org/conference/talk/display/0,5232,23-1-315-10,00.html

She encouraged exercise, which we had already been doing. But now as I run on the treadmill, and feel I can't go much more, I think of Sadie or switch to a song that reminds me of her, and I can keep going. Kay also mentioned to get out everyday, even if it is a walk around the block. Get a change of scenery everyday.

Those are just some suggestions, that I hope some of you can benefit from. I will see Kay again this week so I will add more if I get more. I must say that the idea of seeing someone to "help" in the grieving process seemed unnecessary... as I said, I have Zac and a great support system, so who else do you need? But I swallow my pride. It is their profession to offer help, and I am grateful for the resource.

I ask at this time to keep some families in your prayers. Our little pal Andrew, who may be undergoing some new treatment (www.caringbridge.org/visit/aws). And sweet Maryn, who is in Texas for some new treatments (http://www.marynshope.org/). And please keep all families going through this experience close to your hearts. I've also been asked to post the following link about a young gal who could use your assistance and prayers as well: http://www.ksl.com/?nid=148&sid=8505904.

As for some resources and neat opportunities to help the kids - please refer to http://www.target.com/ and check out the gift coins area to benefit St. Jude's. Please also refer to www.macys.com/believe to check out how they will contribute to Make-A-Wish. And finally, remember coming up in the first week of December is the Festival of Trees (http://www.festivaloftreesutah.org/). There will be a tree honoring the memory of Sadie and our little friend Lucas. All proceeds benefit Primary Children's Medical Center. I'll give more details as it gets closer.

So there is our life in the last little while. All honesty, life without Sades is very, very, very hard. Words can't adequately express the feelings. It just doesn't seems real that we went through what we did, and yet right when those thoughts come, it feels so real. I miss her... my heart really does hurt and I ache to hold her. I have a renewed conviction to do what we need to do to see her again... to be a forever family. I have to have those hugs again!

Thank you for reading my ramblings, and for your continued support, love, and prayers for our family. We are blessed and humbled to have our Team Sadie.



Wednesday, November 4, 2009

HALLOWEEN...

We enjoyed the weekend of Halloween festivities. We painted/carved pumpkins on Thursday, which proved to be the always messy experience yet very fun. As for costumes, we found some monkey costumes a while ago, and as I often refer to the kids as my monkeys, these seemed to be perfect. Come Saturday, as we were getting the kids ready, Sam wanted absolutely nothing to do with her costume. So for Halloween, Livi was a monkey, and Sam was a 2 year old who threw a fit about putting on a monkey costume.

The girls went to Noni's for a party, then we met up and went to a trunk-or-treat in her neighborhood. Afterwards we went to her home for some dinner, and when we got home, Zac took Livi out trick-or-treating and Sam and I passed out candy. It was a full day but the girls seemed to have fun.

We made it through the day OK. We proved to have many reminders of Sadie... what we were doing at this time last year. She was indeed missed. But again, with those reminders come the joy we see with Livi and Sam's experiences.

Yesterday Zac and I celebrated our 8 year anniversary. I'm thankful for a strong marriage that has held tough in times of adversity, and for his love for me. He is my rock, and all of you who know the guy know he is something else. Love him more than I can express.

There are some families that can use your prayers at this time. Little Melana passed away recently (http://www.carepages.com/ visit: melanamatson); Andrew's been dealing with some issues (www.caringbridge.org/visit/aws); and Maryn's tumor is growing (http://www.marynshope.org/). Please show them the same support you have shown our family.

Also, I wanted to ask again if any of you have any connections to anything ski related. We've had a few leads (thank you!), but nothing has panned out. This would benefit The Cure Starts Now's "Once in a Lifetime Gala" that will be held in March. Just email us at huishfam@yahoo.com if you are able to help.

And a heads up to all of you who have had Sadie wristbands break or for those who never got one. We just received some more... they are a little different than previous, as Livi wanted to help in a design. Same concept though - gray for brain tumor awareness and gold for childhood cancer awareness.

For these, we'll sell them at cost ($1.50), just for the ability to continually order wristbands (there are large, medium, and youth). Just email to the address above if you are interested. As always, we thank you for the many ways you have lightened our load, and continue to bless our family. We are so thankful for your love, support, and prayers!

Sunday, October 25, 2009

5 years, 4 months...

I will begin by telling you about our Livi. She celebrated the big "5" last week. I marvel at how much she has gone through in the last couple of years. She watched her big sis and best friend slowly change and then be gone from her life. She took on the role as the oldest child in the home. I continue to watch ever so carefully for if she needs any help... I don't know how this has truly all affected her and may affect her in the future. So far she is doing so well. She had a Sadie moment yesterday... we were heading into the store and completely random she started sobbing. When asked what was wrong, she said, "I miss Sadie". Such are the moments, and then she is good.

So this birthday she was once again the boss; whatever she wanted she got. She really wanted to go to get her nails done (um, not my daughter!). There was a place that did nails for little kids that we went to last year for my niece's birthday, but it isn't around anymore. So, we headed to the local "mommy" nail place, and she got her nails done.






She also wanted to go bowling, so we did that. She beat us all, and the only reason Zac and I were even close to her score was because Sam helped us.




After that we went to Cotsco and got a big batch of roses that Livi picked out (pink and white). We headed to the cemetery, and there we all sang "Happy Birthday" to Livi. Livi then picked certain flowers out of the bunch to put in Sadie's vase. We brought the rest home for Livi's birthday.

The next day was Livi's actual birthday. She opened presents that morning, and later that night we had family come over for cake and ice cream. True to the Huish tradition that Sadie began, Livi made her own birthday cake, and with the help of her cousins, did some wonderful decorating (proved to be a very crunchy but delicious cake - see below). She was also spoiled by her church class and preschool class. I hope she felt lots of love and had a good birthday weekend!




I would like to share some fundraising and awareness opportunities. First off, due to the kindness of a mutual friend, there will be a tree at the Festival of Trees (http://www.festivaloftreesutah.org/) that will be dedicated to Sadie and our little pal Lucas. It will have a Curious George theme with things on it that are a reminder of the kids. By the tree will be the stories of these little angels. This will be held December 2-5 and every penny raised goes to Primary Childrens Hospital, where the two were treated. Please refer to the link for more details.

Also, The Cure Starts Now is looking for some contacts in the skiing community out here in regards to their "Once in a Lifetime Gala". This will be held in March in Cincinnati, and this event auctions off once in a lifetime experiences, like being a ballerina for a day, and also large ticket items. I'm not a skier (I know, and I live in Utah?), so I'm not familiar with the best places to ski. If any of you have contacts or "ins" with ski packages, lodging, or resorts, please email me at huishfam@yahoo.com. CSN is also selling holiday cards, with the artwork done by dipg kids. If you are interested, please visit http://www.thecurestartsnow.org/.

And mark your calendars for Saturday, June 26, 2010. This is when we will be holding our premier fund raising event for CSN. It is a golf tournament and silent auction to be held at the Ranches Golf Club, and tentatively titled "Swinging for Sadie". We just had a meeting about it last week with our committee (which happens to be our awesome family), and it was great... got us really excited for what will occur. It happens to be the day after Sadie passed away (and uncle Nik's birthday!), and will prove to be a wonderful tribute to our little angel and more funding to find a cure. We will provide more details as they come.

On a somber note, I ask you to offer your prayers and support for our little friend Melana, as she is not doing very well (http://www.carepages.com/, visit: melanamatson).

And finally, today marks 4 months since our princess left us for a better place. It is unreal at times and too real at other times. Oh, how we miss her... there is indeed an actual ache to just hug her again. It is truly harder than I could ever convey in words. Celebrating 5 years of our Livi and wishing we didn't have to acknowledge 4 months without Sadie. We are indeed so appreciative of your continued love and prayers for our family.

Monday, October 12, 2009

Rest in peace, my Sades...

Well, it has been a little while... my apologies. I tried posting last week but blogger somehow thought our blog is spam and locked it up... guess that is what they think of it! I think all is well now. I guess it is good they are trying to be efficient. ;)

Life is going well and busy. Livi has loved preschool, and is just being her entertaining self. She was a part of the Primary Program a couple of weeks ago. The Primary theme this year is "My Eternal Family". Livi spoke at the end about how she is thankful for eternal families and how she wants to see Sadie again and be a forever family. She did great, and of course made us tear up - it was a tender sacrament meeting. Sam... well, Sam is crazy and all of the sudden seems to be talking so much more. She loves her sundresses, yet the weather is changing. She isn't a big fan of me putting shirts underneath or tights on her. But she is learning compromise, and it is working out somehow. They are such good kids and bring us so much joy.

We also sure enjoyed the LDS general conference. Every talk was wonderful and uplifting to give a spiritual boost of sorts. The leaders of the church are truly inspired. We had the opportunity to meet Elder Ringwood of the Seventy not long ago, and enjoyed his wonderful address in Sunday's afternoon session. They are all just so amazing. We are continually humbled and our testimonies ever grow that the church and these men are truly looking out for "the one". We love them all so very much. We had some Sadie moments during this time as well. One was when we were updating our 72 hour kits (long overdue), and had the experience of interchanging clothes for two kids instead of three. Another was when I was assessing our winter coat and snowpants needs, and put Sadie's coat away until next year when Livi will use it. I hugged that coat for a little while as I watched conference. Little reminders that catch us at different times. But it means we are remembering, because I don't ever want to forget.

I hate to update about me so I'll keep it brief. The seizures are coming farther in between. The frustration still lies that we don't know when they are coming. I'm not driving right now as a precaution (so all you in Eagle Mountain driving around, don't be scared, you are safe!). We are trying some different dosages of medicine and a few more tests this week. But all is well... thanks for your prayers and help.

We continue to miss our little princess Sadie so very much. We have our good days and our tough days. But she is ever a part of our daily routines. After our night prayers in the girls' room, we say "good night" to Sadie (the pictures of her above their bed) - we blow her kisses with both hands. We all have a stuffed pal to sleep with that is from Sadie... yes, even Mom and Dad! Livi continually talks about her in a manner that makes her happy, though I know she misses Sadie so much. The other night we had a salad with dinner, and I asked her if she wanted ranch dressing. She asked if Sadie liked ranch (which she loved), and wanted some when she found out Sadie liked it. I also noticed this love of her sis with her preschool work. Every time she writes her name on her paper, on the back she draws rainbows, because they remind her of Sadie. Oh, and sweet angel baby Lucas gets a rainbow drawn as well. Every prayer, she says "help us be good so we can see Sadie and Lucas again". She seems to think of him often, and talks much about Lucas when she does Sadie. He will always have a special place in our hearts.

I realize I didn't share the words to that song from Lucas' funeral... the music alone makes you emotional; the words alone make you emotional. Combined? Wham, sobfest! It is beautiful... those last few line just blow the cover off the emotions. I'm sure Lucas and Sades are palling around sharing brave stories. So here are the words (written by Barbara Anderson, his grandmother):

Angels came to the earth, and took me by the hand
I wasn't afraid to go, the light was so beautiful
I met Jesus Christ
He was so proud of me, and said I was worthy
To live with the Father forevermore
So when you think of me, remember what I ask
Be kind and love everyone, share what you have with someone
And serve the Lord
Now it's my time to go, with Jesus right by my side
But I will be waiting at Heaven's door
Don't worry Mom and Dad, I'm just grateful for the time we had
And when your life here is through, I'll be waiting here for you
Angels came to the earth, and took me by the hand
*******************************************************
My heart hurts to make mention of a couple little guys that have passed away from a dipg since I last posted. I regret to say I don't follow many kids right now, but these brave ones I followed as we dealt with Sadie's battle. Please keep their families in your prayers.

I am also humbled to inform you that Sadie's stone is in... we are "done". It was placed sometime earlier last week. The initial moment of seeing it was in brought some tears of reality, but we are very happy with it and are grateful for this finality... something that we can visit and know it is there to stay. I recall earlier when I mentioned the day after her funeral (when we went back and she was buried) that I said then all is finished. Well, it wasn't! Arranging her stone and waiting for that has been a big part of the process. Well, now all is indeed finished.




We thank you for your continued love, support, and prayers for our family, and all others in similar circumstances. These approaching days filled with holidays will prove to be bittersweet as we see the joy of two of our little gals and acknowledge the void of one. Saders, we miss you so very much, and strive to live in a way that will lead us back to you. We hope your stone meets your approval! Can't wait until we walk together again. Love you forever, sweet girl.

Friday, September 25, 2009

3 months...

It's been quite a week! Friday, I had the opportunity to head to Park City with my sis and mom for some girl time. It was well needed and we had a great time. Love them more than I can express...
Sadie let us know she was along for some girl time.


Saturday we just did some hanging out. We were able to meet my brother and his family for lunch as well. I am indeed so thankful for the relationships we have as a family.

At this time I want to thank you all for the support you have been to my family this weekend. I only share this as an update to family and friends and not to invoke pity. Sunday night I had a seizure and stayed in the hospital for a few days, having subsequent seizures since that initial one. Through blood work, diagnostic and imaging testing, I am the picture of health. So we are unsure what they are from. The doctors determined they are non-epileptic in nature, and think they may be from deep rooted anxiety stemming from what we went through with Sadie. I always thought I was dealing with it fine... not hiding my emotions, talking, keeping busy, etc. Apparently my body thinks otherwise! Anyhoo, we're trying some medicine, I'll see the neurologist in the coming week, and we'll try to keep things under control. In the mean time, these seizures kick my trash, so whether it is from those or the medicine, I don't quite feel my bearings are straight right now. Forgive me if I don't come across quite myself.

One interesting thing that happened Sunday night after that seizure was I had something called "Todd's Palsy", which is a form of paralysis after a seizure. For a long time after, I could hear everything, but couldn't move or talk... only blink or move my eyes. It scared the heck out of me. Sound familiar? Yeah, in those moments I continually thought of my Sades. I got a taste of what she lived with... and gained, once again, a greater appreciation for her bravery and how she coped with her limits. I was indeed grateful to have wonderful family and special visitors around so it wasn't so scary. I only pray that we were that kind of comfort for Sades when she was going through those kind of moments. So thank you all again for your prayers.

As for today... 3 months ago our Sades left to be with the angels. It was only 3 months ago that I held my little gal. It seems like it has been years and years. Tonight we visited her grave and reflected. No stone yet, but hopefully soon. On this mark of her passing, I thought I'd share some of her favorite things, a list we shared at her funeral (parentheses mark other answers she gave at some point). And I don't think I ever shared her painting that was displayed at her services, so here it is - 30"x40" masterpiece.

FAVORITES:
DESSERT: VANILLA ICE CREAM CONES, STRAWBERRY SHORTCAKE
VACATION: SEUSS LANDING (UNIVERSAL STUDIOS) & THE BEACH
STUFFED PAL: LAMBY
PRINCESS: KIM, JESSICA (MISS EAGLE MOUNTAINS) - DISNEY PRINCESS VARIED WITH THE MOOD
NUMBER: 9 MILLION (SHE SAID "IT’S BIG")…. (22, 200)
COLOR: PINK (RED, WHITE)
BOOK: LOVE YOU FOREVER (I WISH THAT I HAD DUCK FEET, DR. SEUSS, PRINCESSES)
RESTAURANT: APPLEBEES & MCDONALDS
ANIMAL: HORSE
CEREAL: LUCKY CHARMS (HONEYCOMB, FROSTED FLAKES)
INSECT: LADYBUG (BUTTERFLY)
INSTRUMENT: VIOLIN
TEMPLES: JORDAN RIVER (ALSO SALT LAKE, SAN DIEGO, OQUIRRH, AND DRAPER)
SINGER: OLIVIA (HER SISTER!), JOSH GROBAN, CARRIE UNDERWOOD, TAYLOR SWIFT, HILARY WEEKS, RASCAL FLATTS
MOVIE: BARBIE MOVIES, BEAUTY & THE BEAST (SLEEPING BEAUTY, SNOW WHITE)
FOOD: ITALIAN (SPAGHETTI, LASAGNA)
CARTOONS: TOM & JERRY, SPONGEBOB
SPORTS: SOCCER AND DANCE
HOBBIES: BOOKS, COLORING, DRAWING, PAINTING, PUZZLES, WII, BEADS
WHAT SHE WANTS TO BE WHEN SHE GROWS: BAKER, ARTIST, DOCTOR (WHO DOESN’T GIVE ANY POKIES), COUNTRY SINGER
BYU OR UTAH: UTAH

So hopefully this helps you get to know Sades a little better. 3 months later, we miss her the same as the moment she passed. But we walked away from her grave today thinking just how joyous the reunion will be. We are so thankful we have been given the gift of forever families, and for faith in the plan of salvation. It is so hard to be patient, but I can't wait to see Sadie again. Miss you pal... love you forever.

Wednesday, September 16, 2009

SPECIAL EXPERIENCES...

Well, I want to refer you to the website of our little friend Andrew (www.caringbridge.org/visit/aws). You may recall me posting a letter around this time last year acknowledging childhood cancer awareness - it was from a mom who is a breast cancer survivor and has a child with a dipg, diagnosed four days apart... remember that? This is the same family. We were blessed to be a part of a special experience with them recently. I had wanted to share this before, but didn't (and still don't) want to come across as prideful or in a seemingly boastful manner. It is truly just such a remarkable story. Sandy, Andrew's mom, just shared it on his site (Sept. 14). We are grateful and humbled for her kindness and sincerity to our angel Sadie and our family, yet really feel inadequate for the praise; I refer you to it only to have you witness another of the Lord's tender mercies and true miracles, and for the awareness to support Andrew. The way it all came together, everyone involved... still gives me goosebumps. We feel so blessed to have been a part of the experience, and are grateful to have gotten to know them better through it. Andrew is approaching 2 years since diagnosis and is such a fighter. We have followed his site since shortly after Sadie was diagnosed; please take the time to continue to support him and his sweet family... they are indeed very special.

Olivia officially started school last week, and loves it! As we were leaving that first day, Sam got so somber and teary and said "I want Livi". We had to go back in and give her a big hug - she was OK after that. Such are the random emotions around here! It was tender and sweet, and I'm grateful for the bonds they share. Here's Livi on her first day, and Sadie on her first day. Livi wore the same shoes as Sadie... they are her favorites right now, and uses Sadie's same preschool backpack. We have a variety of backpacks, yet she still very much wants to be like her big sis. I can't believe Livi is this old. Hopefully Mrs. "O" is still teaching when Sam gets to that age... another picture by the door!


I also wanted to acknowledge my brother (Sadie's uncle Nik)... we recently got some pictures of the work he is doing back in Chicago. As Sadie wanted to be a baker when she got older and always loved seeing what Nik could do with his pastry skills, I imagine she is very proud.

Life is going well... we have kept busy this last week. Zac and I had the opportunity to go to Martins Cove in Wyoming, which is a place that holds great meaning in regards to some of the pioneers that crossed the plains and endured extreme hardships. It is a place that means much to our faith. Needless to say, it was humbling and eye-opening, and I learned so very much in a short time. We were also able to attend the "Night Out at the Movies" sponsored by some of our city officials and were able to help promote the Utah chapter of -The Cure Starts Now- (http://www.thecurestartsnow.org/). We appreciate all those who helped with the night and awareness for this cause. And we are grateful to the city for giving us these awareness opportunities.

This next week makes for a humbling one. Tuesday (the 22) marks Hannah's birthday (www.caringbridge.org/visit/hannahbinns) and the one year mark since Mara passed away (http://www.maraadams.com/). Friday (the 25) marks the two year mark since Hannah passed away, and 3 months since our sweet Sadie passed away. Please keep us all in your prayers... it will prove to be emotional I'm sure. These two families are doing book drives in honor of their angel princesses - refer to their sites for more details if you want to take part.

We are doing well, yet we truly miss Sadie more than I can express. Her stone should be done soon... I will put a picture on here when we see it. We thank you for your continued love and support!

Tuesday, September 8, 2009

More humility...

Well, this weekend has brough much humility... reminders that we are a part of the childhood cancer world, but sweet experiences. On Friday night, we had the opportunity to have a BBQ with the Peterson family (www.caringbridge.org/visit/ashleypeterson) and Brandon Palmer and his daughter (www.caringbridge.org/visit/morganpalmer). We laughed, we got teary; such is our experience. As much as we talked about life, conversations always reverted to our brave little angels. Lots of pride in our sweethearts! Later that night, we attended Lucas' viewing (http://nelsonsforever.blogspot.com/); it was hard but I'm glad we went. And he looked just adorable. Saturday morning we attended his funeral... it was a beautiful service. Many parts of it reminded me of Sadie's services (the opening and closing hymns were the same, and "A Child's Prayer" was part of the program, etc). Aaron and Shannon gave great tributes to their little angel, and Shannon's mom composed an amazing song... one that was from Lucas' perspective with his passing. I will put the words on here soon - that will give you adequate time for a tissue. We also found out that our little friend Maryn's (http://www.marynshope.org/) tumor has shrunk 75% from radiation! Please continue to pray for her to do well.

On Sunday, we had the chance to see the Nelsons once more as they stopped by for a second... Shannon mentioned that on the way to the graveside service for Lucas, there was a rainbow... that was really neat to hear! Sadie's primary teacher also dropped off some pictures her class drew in remembrance of Sadie. I'm very grateful they still acknowledge her in their class. And the Weeks family also came by for a visit (http://www.hilaryweeks.com/). An amazing family, and we will forever be thankful for their generosity.

In other news, Olivia is starting preschool tomorrow! She had her open house last Wednesday; I hadn't been in that room since the week before Sadie was diagnosed. I was really OK until I was driving home and my sister called. Unlucky for her, she caught me in my emotions! But we are so excited for Livi; she has just grown up so much. She is also officially riding her bike without training wheels. She first rode her little Dora bike without them a few days ago, then Zac took the training wheels off of Sadie's (bigger) bike yesterday, and she is riding that one now. This brought much reflection as 1) She was riding Sadie's bike, and 2) Sadie was never able to try this, as her balance wouldn't allow it. A moment of missing Sadie, and a proud moment of our little Livi.
Zac put the training wheels back on the Dora bike for Sam. Though she can't reach the pedals, she still wanted to sit on it. She also wanted to wear a helmet and pads like Livi, so we got Livi's old ones out. Um, I never really understood what it mattered to have a kid with a head circumference in the 90-95th percentile (all my kids have). Well, this is one result of that statistic. This helmet fit Livi when she was this age, but not so much luck with Sam. Yet, she still wanted it on, so we let it go!
So it's been a good and teary weekend. We stopped by the cemetery last night, and there was a cute butterfly stick with a croc keychain attached to it... a sweet reminder of our little Sadie! I found out Bryan Adams (http://www.maraadams.com/) had a quick trip to Utah and made the visit to Sadie's grave. He brought that keychain from a dear family friend. The butterfly and the croc are indeed sweet reminder of our little gal.
The love we feel from everyone continues to be so amazing and continues to buoy us up. We sure need it! Gosh, I miss my Sades. And having her and Olivia so close (20 months apart) bring many comparisons. It's not something I try to do, but it happens. There will always be a remembering of what Sadie was doing at this age. And I realize soon there will come a time when I won't have a memory of Sadie doing something at a certain age, as the girls will be become older than their big sis ever was. Yet, all these moments we take a second at a time. I imagine as the days, weeks, months, and years pass, it will not feel any easier. Just that for the rest of my life I will have good days and bad days. It is almost like a dream that she was here, that she went through what she did. Then we watch movies and look at pictures, and we know it is real. We try our best to keep her memory fresh. I have her laugh as my ringtone, and we have reminders of her in every room... a careful balance of not making the girls feel inferior, but a way to keep her a part of our home. Her stone should be done in the next couple of weeks as well. I imagine we will just show up one day and it will be there. It will be bittersweet to see it... glad to have it done, but a punch in the gut at the same time!

So, give your kids big hugs and kisses today, and just tell them you love them. Please remember our Sadie, and all these little ones who fought, and fight, so bravely. Please continue to pray for our families. And don't forget this month dedicated to Childhood Cancer Awareness (and if you are in the area of Eagle Mountain Saturday night, come to the movie! - see the info at the top right of the blog). As we have been getting stuff ready for Saturday, it has been hitting me really hard that we are doing this "in memory" of Sadie. How I wish my eyes had been opened to awareness under different circumstances. But I hope we are making her proud. Just think about it... lives are going to change forever tomorrow as children will be diagnosed with cancer throughout the day. It could unfortunately happen to anyone. Be a part of the awareness. Thanks to all of you for your continued support!